What the HHT?

A Voice for the HHT Community

Let’s Get This Started!

1 Comment

Raise your hand if you’ve heard the following: “You have what? What in the world is HHT?” Well now is the time to get your voice and your story heard.

The new Cure HHT blog – What the HHT – is another awareness avenue for patients, doctors, supporters and organization members to share stories, videos and pictures with the world and each other.

And, of course, for Cure HHT to keep you updated about the goings on in the world of HHT and how those things relate to you.

The goal is to start with at least one post a week and grow from there as more and more of the community step up to contribute. This is how you create change – it only takes one voice to spark a hundred, and then a thousand and then a million.

Will you be that voice for Cure HHT?

Get involved and stay empowered. Contact [email protected] to be a part of What the HHT.

One thought on “Let’s Get This Started!

  1. Hi Desiree,
    I am a fellow ‘sufferer’ from Seattle 🙂 Thanks for bringing up the blog! I have learned to become my own advocate over the last 15 years and am happy to add my small slice of knowledge learned by experience – in the comments section.

    Best Regards

    David Kaimana


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